It's been over two weeks since my last entry! I was so busy the week before we went on vacation and then the vacation itself.
So, let me see if I can back track a bit.
I had my Neuro appt on Feb 9th. It went well. My PD symptoms continue to be improved so the w e l l b u t r i n is still working in that area. The depression seems to be a bit better too but still not as good as I'd like it to be. I have a follow up with my primary care Dr. tomorrow. I am thinking she'll up the dosage. She put me on the lowest dosage to start with (only 100mg 2x's). Dr. R (the neuro) was happy with my condition. She said I look 100% better, her words were, "you can even tell you have PD". I was shocked she said that and very pleased. She also said that I am not progressing as fast as some of her other YOPD patients. That was also good to hear because I felt like I was progressing fast.
I told her about the Zelapar NOT working for me at all and that I went back to taking the selegiline pill. She found that odd but said perhaps I needed the amphetamine like boost that taking the selegiline pill gave me. She said it was unusual and certainly interesting. She said to hold onto the Zelapar, that maybe we'll give it another try somewhere down the road.
I discovered something about myself that day. I still haven't completely accepted that I have this. I keep thinking it's going to get better. I keep wanting it to get better but it simply isn't. It is only continue to get worse as it progresses. That is a hard pill to swallow. I also have been thinking about the reality of where this disease is taking me and what that means for my husband. I know he'll be there for me and he'll care for me but it just all seems so unfair. I am working that one through...
Anyway, she still encourages me to exercise, which I am still NOT doing. I somehow have to find a way to fit it in. Not only for the PD, but I really need to lose weight. It occurred to me that if my husband is going to someday really need to care for me, it will be so much harder on him if I am 100+ lbs overweight. :o( Of course I say this as I am downing the girl scout cookies that were delivered yesterday. ***sigh***
Ok, so much more to write but I have to go eat something and maybe try and get to church today.
More later.
Toodles!
About Me
- TheatreChick93
- Massachusetts, United States
- I am 41 years old. I have been married to my husband for 15 years. We have a son who was born in April 1996. We live in Central Massachusetts with our dog Maggie (a black lab we adopted from the animal rescue league) and our cat Sam (a stray that adopted us) I graduated from college with a BFA in Theatre in 1993 (hence the name) and for a few years pursued a career as an actress. Then life took over and I got married, had a baby and decided to get a "real" job. In November 2004, I was diagnosed with Young Onset Parkinson's disease. In December 2004, I was hospitalized for surgery to remove an ectopic pregnancy. In December 2009, I was laid off from my job. In June 2010, my son was diagnosed with Asperger's Syndrome at the age of 14. Stick around to see what happens next!
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