About Me

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Massachusetts, United States
I am 41 years old. I have been married to my husband for 15 years. We have a son who was born in April 1996. We live in Central Massachusetts with our dog Maggie (a black lab we adopted from the animal rescue league) and our cat Sam (a stray that adopted us) I graduated from college with a BFA in Theatre in 1993 (hence the name) and for a few years pursued a career as an actress. Then life took over and I got married, had a baby and decided to get a "real" job. In November 2004, I was diagnosed with Young Onset Parkinson's disease. In December 2004, I was hospitalized for surgery to remove an ectopic pregnancy. In December 2009, I was laid off from my job. In June 2010, my son was diagnosed with Asperger's Syndrome at the age of 14. Stick around to see what happens next!

Sunday, April 29, 2007

Parkinson's Unity Walk 2007

Yesterday was the walk. It was a day I will not soon forget. It was a very emotional day for me...but in a good way.

First, I was surrounded by so many people who love me. My husband, my son, my parents, my sister & her son, my brother and his kids, two of my aunts and one uncle. The kids made signs and we all spent the day together.




The weather was good. No rain!! It varied between sunny & cloudy.

The first memorable moment was meeting Lonnie Ali (Muhammad's wife). She was there promoting her Fight For More campaign. What a wonderful woman. She was incredibly easy to talk to. She seemed genuinely caring about me and my PD. It was quite the experience.





The most memorable moment for me we that I got to met my role model,
M i c h a e l J . F o x !!!!!!! (written like this b/c he's in the news a lot lately and I want to make this less search able.)

Anyway, I waited in line for about 20 minutes and people just kept push by me..my sister was with me. I stood in awe watching him as he met one person after another, signing this and that, taking pictures. He was visibly shaking (from the PD) and I was just amazed at his generosity.


Finally, one of his handlers caught my eye and saw what was going on (with the people pushing). He grabbed my arm and said "you're next!". I stepped up to the table and then I lost all ability to speak, completely forgot my name.. Not because he is a celebrity but because of the deep respect and admiration I have for him in his fight for PD and for those of us who have it.
(I don't get starstruck often celebrities are not different that you or I they are just well known...actually only once did I get starstruck when I met Chris Reeve at an event at P's theatre...but that's a story for another day). My face started twitching and my arm and hand was shaking but he looked at me with such kindness in his eyes. I shook his hand and said hello and asked him to sign my PD Walk shirt. He asked me to hold the shirt tight and he signed it. Rather well actually considering his PD.

Then he leaned over for a picture. My sister took it. It came out well. I'll post it when she sends it to me.

When I walked away P met me and I began to cry (have I mentioned one of the "symptoms" of PD is being hyper-emotional?) He asked me why I was crying. I couldn't put it into words. I think it was a combination of him being such a role model for me in how I want to live my life with PD and from watching how caring & giving he is. It really was an amazing feeling. It was a good cry..not a bad one.

Then the speeches began. We were sitting in a spot where we couldn't hear most of them but when MJF spoke I stood up closer to the front to hear him. He spoke of how wonderful it was we were all there that day and mentioned how important the stem cell bill is and that even though it will again be vetoed and we will not have the votes to override that it was important that people are talking about it.

Then the walk began. We did the 2 mile walk in about 2 hours! I probably should have only done 1/2 but I was determined. (I am under medicated at the moment...need to do a post about that to catch everyone up).

All in all it was an amazing day!

OK, that's all for now, this chick is tired.

Toodles.

Thursday, April 19, 2007

WTF???

This world is just so messed up. Sometimes I really wonder about the world I brought my son into.

The supreme court upholds a law on partial abortions, but they won't have gun control? So one life is better than another?

We can't see caskets of our dead soldiers from war but they'll show this maniac's video all over the place?

I am trying to live in the positive but it is getting so hard...

Toodles,
Janice

Sunday, April 08, 2007

sick, sick, sick

OK...i've been mia for the last month. I have literally been sick for the past four weeks. First my ankles & foot swelling, which is finally sort of gone. I had to go off my amantadine...that opens up a whole other issues with my PD.

Then I had this awful upper respiratory virus for a week 1/2, then last Tuesday night I came down with the stomach flu. I was driving my son to an after school program when I got sick while driving. Luckily I had an empty chip bag in the front seat which served as a catch all...but not fun to be puking and driving at the same time.

Now, I would rather put hot pokers in my eyes then throw up. I threw up for 12 hours straight. It was just awful. Then I was all achey and week for the next two days. I got well enough to cantor the Good Friday service that night only to wake up at 5am Saturday with a 101 fever. Looks like I have a sinus infection now. OH JOY!! I drugs now but I am still out of commission today. Cancelled Easter dinner with my in-laws. I have been living on the couch. Meanwhile...nothing around the house is getting done. Only what P can get done.

He's had the month from hell as well at work. LONG STORY...but it has made for a very stressful time between us. I am hoping we are over the worse of it. Things have to start getting better....they just have to.

Toodles.