It's been over two weeks since my last entry! I was so busy the week before we went on vacation and then the vacation itself.
So, let me see if I can back track a bit.
I had my Neuro appt on Feb 9th. It went well. My PD symptoms continue to be improved so the w e l l b u t r i n is still working in that area. The depression seems to be a bit better too but still not as good as I'd like it to be. I have a follow up with my primary care Dr. tomorrow. I am thinking she'll up the dosage. She put me on the lowest dosage to start with (only 100mg 2x's). Dr. R (the neuro) was happy with my condition. She said I look 100% better, her words were, "you can even tell you have PD". I was shocked she said that and very pleased. She also said that I am not progressing as fast as some of her other YOPD patients. That was also good to hear because I felt like I was progressing fast.
I told her about the Zelapar NOT working for me at all and that I went back to taking the selegiline pill. She found that odd but said perhaps I needed the amphetamine like boost that taking the selegiline pill gave me. She said it was unusual and certainly interesting. She said to hold onto the Zelapar, that maybe we'll give it another try somewhere down the road.
I discovered something about myself that day. I still haven't completely accepted that I have this. I keep thinking it's going to get better. I keep wanting it to get better but it simply isn't. It is only continue to get worse as it progresses. That is a hard pill to swallow. I also have been thinking about the reality of where this disease is taking me and what that means for my husband. I know he'll be there for me and he'll care for me but it just all seems so unfair. I am working that one through...
Anyway, she still encourages me to exercise, which I am still NOT doing. I somehow have to find a way to fit it in. Not only for the PD, but I really need to lose weight. It occurred to me that if my husband is going to someday really need to care for me, it will be so much harder on him if I am 100+ lbs overweight. :o( Of course I say this as I am downing the girl scout cookies that were delivered yesterday. ***sigh***
Ok, so much more to write but I have to go eat something and maybe try and get to church today.
More later.
Toodles!
ramblings of a 38 year old woman who has come to terms with secondary infertility and young onset parkinson's disease and is now embarking on a major weight loss journey.
About Me
- TheatreChick93
- Massachusetts, United States
- I am 41 years old. I have been married to my husband for 15 years. We have a son who was born in April 1996. We live in Central Massachusetts with our dog Maggie (a black lab we adopted from the animal rescue league) and our cat Sam (a stray that adopted us) I graduated from college with a BFA in Theatre in 1993 (hence the name) and for a few years pursued a career as an actress. Then life took over and I got married, had a baby and decided to get a "real" job. In November 2004, I was diagnosed with Young Onset Parkinson's disease. In December 2004, I was hospitalized for surgery to remove an ectopic pregnancy. In December 2009, I was laid off from my job. In June 2010, my son was diagnosed with Asperger's Syndrome at the age of 14. Stick around to see what happens next!
Sunday, February 25, 2007
Thursday, February 08, 2007
It's EMMY time again!
The daytime emmy's children's programing nominations were announced yesterday.
P got 4 NOMINATIONS this year!
They are all in the same catagory. So, he has an 80% chance of winning.
The cermony is in LA this year. Not sure if he's going or not yet. It's in June and it may conflict with B's graduation from elementary school b/c we haven't had any freaking snow days!
So, well see.
I am so proud of him!!
Toodles
P got 4 NOMINATIONS this year!
They are all in the same catagory. So, he has an 80% chance of winning.
The cermony is in LA this year. Not sure if he's going or not yet. It's in June and it may conflict with B's graduation from elementary school b/c we haven't had any freaking snow days!
So, well see.
I am so proud of him!!
Toodles
Saturday, February 03, 2007
What a week!
This has been a crazy busy week.
Monday I had my Dr. appt with my primary care. My glucose test came back normal. My cholesterol is still high but my HDL was higher so my ratio changed from Highest Risk to High Risk. whoohoo!! :o)
She didn't say boo about my weight, which I was glad about because I just didn't want to hear it. I know, I'm fat, I need to lose like 100 pounds but I got other things I'm dealing with and I am doing my best damn it...and that's that!
I talked to her about my depression. We decided to give w e l l b u t r i n a try. I've been on it since Wed. It seems to be working well. A few side effects...headache, constipation...but those should subside. I panicked a little when I read about it online. There are warnings everywhere that say you shouldn't take if you are on an MAO and in some place it specifically says selegilline (which I take). But, upon more research I found out that most neurologists think that the risk is overblown. I guess it really only happens at high doses. And then it causes seizures. A few added bonuses to this medication. It helps with weight loss (whoohoo!!) AND it is actually Dopamine Reuptake Inhibitor. So, my PD symptoms have suddenly improved. I don't know if it is placebo effect or what...but frankly I don't care. I am feeling 100% better and I can move so I'm taking it while I can get it. I have my neuro appt next Friday so it should be interesting to see what she says.
What else.....
B had his winter concert this week. It was good. The band was excellent (for an elementary school) but the chorus wasn't that great. The teacher doesn't seem very good. But, B loves it and that is all I can ask for.
We got his report card. It was good and for once only one mention of the need to improve his behavior. I am so hoping this trend continues. Although, he has been having meltdowns again this week. Seems to be just with us. He gets so frustrated and angry and then just loses it. We'll need to work with him on that. I have to figure out what's going on with him. Could just be hormones!
Speaking of hormones... My friends daughter got her period last week. She'll be 11 in a few weeks. She's the same age as B. I can't believe they are growing up so fast.
I think that's it. We finally got some snow. 3 whole inches! OH BOY!! B has skiing today. P drove him up there and they called me when they got there to tell me it was unbelievably packed. I think everyone was inspired.
Ok, that's it. 2 weeks until we leave for Disney...I can not wait!
Toodles
Monday I had my Dr. appt with my primary care. My glucose test came back normal. My cholesterol is still high but my HDL was higher so my ratio changed from Highest Risk to High Risk. whoohoo!! :o)
She didn't say boo about my weight, which I was glad about because I just didn't want to hear it. I know, I'm fat, I need to lose like 100 pounds but I got other things I'm dealing with and I am doing my best damn it...and that's that!
I talked to her about my depression. We decided to give w e l l b u t r i n a try. I've been on it since Wed. It seems to be working well. A few side effects...headache, constipation...but those should subside. I panicked a little when I read about it online. There are warnings everywhere that say you shouldn't take if you are on an MAO and in some place it specifically says selegilline (which I take). But, upon more research I found out that most neurologists think that the risk is overblown. I guess it really only happens at high doses. And then it causes seizures. A few added bonuses to this medication. It helps with weight loss (whoohoo!!) AND it is actually Dopamine Reuptake Inhibitor. So, my PD symptoms have suddenly improved. I don't know if it is placebo effect or what...but frankly I don't care. I am feeling 100% better and I can move so I'm taking it while I can get it. I have my neuro appt next Friday so it should be interesting to see what she says.
What else.....
B had his winter concert this week. It was good. The band was excellent (for an elementary school) but the chorus wasn't that great. The teacher doesn't seem very good. But, B loves it and that is all I can ask for.
We got his report card. It was good and for once only one mention of the need to improve his behavior. I am so hoping this trend continues. Although, he has been having meltdowns again this week. Seems to be just with us. He gets so frustrated and angry and then just loses it. We'll need to work with him on that. I have to figure out what's going on with him. Could just be hormones!
Speaking of hormones... My friends daughter got her period last week. She'll be 11 in a few weeks. She's the same age as B. I can't believe they are growing up so fast.
I think that's it. We finally got some snow. 3 whole inches! OH BOY!! B has skiing today. P drove him up there and they called me when they got there to tell me it was unbelievably packed. I think everyone was inspired.
Ok, that's it. 2 weeks until we leave for Disney...I can not wait!
Toodles
Subscribe to:
Posts (Atom)