Four years since my diagnosis.
This year has been hard. My symptoms have really progressed. I have real memory issues now. Short term memory recall. I am almost always stiff now and my tremor has gotten worse. Walking is difficult now but I still trudge on.
I am taking Sinament now and Tasmar. Losing the Neupro patch was a huge blow for me. I am still coming to terms with it.
Work has been hard. I am almost always in some sort of pain. Symptoms are appearing on both sides of my body now. Depression and apathy remain a struggle and energy to get through the day is lacking. Most days I need a nap mid day.
I am now having real serious conversations with myself and Paul about how much longer I will be able to work. We shall see where that goes. I have started the process of gathering information about SS disability.
Despite all this, my mood remains positive. I am so grateful for all I have in my life. My amazing husband, my beautiful son and so many incredible friends and family. I am truly blessed. Every day is a gift and I choose to make the most of it. No sense in dwelling in the sorrow and the pity party for myself. Life is too short.
I try to enjoy my time with the people I love. I can not tell you how much I love my husband. It is beyond words. Every day, every year my love for him grows deeper and stronger. I am so lucky.
My son is growing so fast. He'll turn 13 this year. A teenager. I want to enjoy his growing up. Watching him discover what life is all about. Hopefully guiding him in the right direction along the way. He is a wonderful boy. Caring, smart, inquisitive, loving. I hope he never loses those qualities.
Well, that's it for now I guess. Whatever this next year brings, I know I will make it through with the love and support of those around me. And although it is a bit daunting, I am looking forward to all the joys this next year will bring.
Toodles!
About Me
- TheatreChick93
- Massachusetts, United States
- I am 41 years old. I have been married to my husband for 15 years. We have a son who was born in April 1996. We live in Central Massachusetts with our dog Maggie (a black lab we adopted from the animal rescue league) and our cat Sam (a stray that adopted us) I graduated from college with a BFA in Theatre in 1993 (hence the name) and for a few years pursued a career as an actress. Then life took over and I got married, had a baby and decided to get a "real" job. In November 2004, I was diagnosed with Young Onset Parkinson's disease. In December 2004, I was hospitalized for surgery to remove an ectopic pregnancy. In December 2009, I was laid off from my job. In June 2010, my son was diagnosed with Asperger's Syndrome at the age of 14. Stick around to see what happens next!
