About Me

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Massachusetts, United States
I am 41 years old. I have been married to my husband for 15 years. We have a son who was born in April 1996. We live in Central Massachusetts with our dog Maggie (a black lab we adopted from the animal rescue league) and our cat Sam (a stray that adopted us) I graduated from college with a BFA in Theatre in 1993 (hence the name) and for a few years pursued a career as an actress. Then life took over and I got married, had a baby and decided to get a "real" job. In November 2004, I was diagnosed with Young Onset Parkinson's disease. In December 2004, I was hospitalized for surgery to remove an ectopic pregnancy. In December 2009, I was laid off from my job. In June 2010, my son was diagnosed with Asperger's Syndrome at the age of 14. Stick around to see what happens next!

Monday, October 22, 2007

Me to a T

A fellow PD'er recently posted this on her blog. She wrote it about herself but it describes me to a T!

The Less Visible Symptoms of Parkinson’s

When people think of Parkinson’s Disease (PD), they usually picture the physical manifestations of this movement disorder: tremor, shuffling steps, stooped posture, stiff and rigid movements, poor balance and dyskinesia.

I and others living with PD take pride in our intelligence and education. Most of the people I know with PD have at least a Master’s degree. A doctor from China said that all of his PD patients in China were nuclear physicists and that I was in good company. I didn’t feel reassured.

Margery H. Silver, Ed.D., is a neuropsychologist, and has a husband with PD. She wrote a terrific article entitled Cognitive Changes in Parkinson's. It is informative, practical and succinct including strategies for circumventing or managing these cognitive changes. Dr. Silver is also the co-author of Living to 100: Lessons in Living to your Maximum Potential at Any Age.

Dr. Silver categories the cognitive changes from PD as follows:
Bradyphrenia (slow thinking)
Attention and concentration
Executive functions
Memory
Visual-spatial abilities

Some of these cognitive changes from PD have impacted my behavior as follows:

Bradyphrenia (Slow Thinking)
My thinking is sometimes slow in answering a question, writing this blog, doing word jumbles, crossword puzzles, and playing Scrabble. I will eventually come up with an answer or solution, but it may take awhile. This is particularly frustrating because I previously prided myself on being an instant, quick to respond and decisive person.

Attention and Concentration
My ability to concentrate and to ignore distractions has decreased with PD. I can no longer simultaneously read and listen to music (instrumentals seem easier but songs with words are impossible). When I was working, it was difficult to deal with the constant interruptions by people who arrived in person or called by phone.

Executive Functions
I sometimes have difficulty with executive functions. They include my ability to initiate a task or activity on my own, to plan (for instance, what I will do during the day), to organize tasks and materials, to sequence (arrange items or things to do in order), to prioritize and to shift between activities and conversational subjects.

Memory
In Parkinson's disease, it is usually the retrieval of information that is impaired. I can usually get memories into storage (if I’ve paid attention), but I sometimes have difficulty recalling them. Occasionally, I have difficulty recalling a person’s name or grope for the correct word in conversation. Fortunately, memory has always been my strong suit and continues to serve me well.

Visual-Spatial Abilities
This term refers not to vision per se, but to how the brain interprets a visual image. I sometimes have difficulty judging distances and relationships between objects. In the past, I teased seniors who parked on sidewalks, but now I find myself parking on sidewalks, misjudging where the curb ends and the sidewalk begins.

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