had a nero appt yesterday.
i've progressed some.
today i put in a formal request for an accomadation under the ADA to work from home 3 days a week.
there is a formal process and review i have to go through now. my dr. needs to say why i would need this.
it makes me sad to have to ask for this.
to admit i need help to live life to the standard that i want.
i hate this disease with all my being.
i want to be whole again.
i feel like a failure.
i want to feel happy again. when it that going to happen?
i want to be as healthy as i can be. when am i going to wake up and take control?
ugh...i am just so sad today.
vacation starts this sat. 1st week here at home, 2nd week in wells, me.
pool has a major leak in it. lost 3 inches overnight... 3 nights in a row.
called pool guy...can't come out til thursday. figures..vacation at home next week and we probably won't have the use of the pool! not to mention the cost of fixing it.
money is a huge problem right now but paul and i are choosing to ignore it...for now. it will catch up with us eventually. how can people like us who combined make over 6 figures be in such financial straights. we really didn't plan this one well. we are in debt over our heads...way over! god forbid something happens...we are so beyond screwed.
ok..back to work.
marn...come see me...i miss you.
Toodles
About Me
- TheatreChick93
- Massachusetts, United States
- I am 41 years old. I have been married to my husband for 15 years. We have a son who was born in April 1996. We live in Central Massachusetts with our dog Maggie (a black lab we adopted from the animal rescue league) and our cat Sam (a stray that adopted us) I graduated from college with a BFA in Theatre in 1993 (hence the name) and for a few years pursued a career as an actress. Then life took over and I got married, had a baby and decided to get a "real" job. In November 2004, I was diagnosed with Young Onset Parkinson's disease. In December 2004, I was hospitalized for surgery to remove an ectopic pregnancy. In December 2009, I was laid off from my job. In June 2010, my son was diagnosed with Asperger's Syndrome at the age of 14. Stick around to see what happens next!
No comments:
Post a Comment