PD and Me...

With PD every day is different. You never know what your going to get (kinda like a box of chocolates...but I digress).

I am still learning to adjust to this fact. I've got a few weeks without the terrible dystonia that I get. I get it mostly in my back, neck & hip. It is terribly painful. My back especially. It pulls the muscles under my shoulder blade. It actually makes it feel like one of my ribs is being pulled out. It's not, but that's what it feels like. The tightness wraps around from my spine to just under my right breast.

My right hip is being pulled forward and it causes me to walk funny. And it aggravates my back. My hips are literally turned. It's uncomfortable but not as painful. I also get it in my neck and face. I pulls my head to the left and the tightness in my face is in my lower jaw and pulls my mouth downward.

I have pain patches that I use for my back when I need them. Other than that, I haven't found the secret to making it feel better.

I went for about four weeks without having it. Then yesterday morning I woke up and BAM! there it was again.

I really just want to feel normal again. I don't think that is ever going to happen. I haven't wrapped my head around that yet. I have to come to grips with what is my "new" normal. I just haven't figured that part out yet.

I've also noticed some issues with my voice lately. Mostly when I sing. I don't have the volume and control that I use to have. It's not hugely noticeable...at least I don't think it is. It's just noticeable to me. And it sucks.

I have a Neuro appt in two weeks. I want to talk to her about my options. She added the extra amantadine and that worked great! The Zelapar she switched me to was a mistake. Didn't work at all. So, I'm still on the Selegiline which seems to work well.

I just feel like things could be better.